Awareness for Neurodegenerative Diseases

Raising awareness. Empowering hope. Fighting Neurodegenerative dieseses, one voice at a time.

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Our
Work

Get to Know Us

At NeuroVoices , we’re committed to making a difference in the lives of those affected by Parkinson’s and Alzheimer’s.

Advocacy: We reach out to lawmakers and board members to support important legislation like AB 829, pushing for better care and resources for patients.
Innovation: We developed a preliminary board game designed to support memory, focus, and engagement for those living with Parkinson’s and Alzheimer’s.
Community Engagement: We've met and spoken with patients and caregivers to learn from their real experiences and better understand their needs.
Join Us: We’re looking for passionate, like-minded people who want to help drive awareness, support patients, and push for change. You can make a difference—get involved today!

What are Neurodegenerative Disease and their Impacts

Neurodegenerative diseases cause progressive loss of nerve cells, leading to declining memory, movement, and cognition.

Common types include: Alzheimer’s, Parkinson’s, ALS, and Huntington’s.

These conditions worsen over time and have no cure. They greatly affect quality of life, often leading to loss of independence. Families face emotional and financial strain, while healthcare systems bear growing costs. Early diagnosis, public awareness, and continued research offer hope.

Through advocacy and support, we can improve care, advance treatments, and build a more compassionate future for those affected.

Our mission is to build a compassionate, informed, and action-driven community dedicated to supporting those affected by neurodegenerative diseases, including Parkinson’s disease, Alzheimer’s disease, Frontotemporal Degeneration (FTD), and related disorders. We are committed to raising awareness, amplifying patient voices, and promoting greater understanding of the challenges faced by individuals and families living with these conditions.

We believe that no one should face these diseases alone. That’s why we work to educate the public, engage with lawmakers, and collaborate with medical and community leaders to advance awareness and support initiatives such as California’s SCR-184, which recognizes Frontotemporal Degeneration Awareness Week. Through our efforts, we aim to foster a healthcare system and society that better understand and respond to the needs of those affected by neurodegenerative diseases.

In addition to advocacy, we create patient-focused resources, including interactive tools and games designed to support memory, focus, and meaningful connection in everyday life. We also meet directly with individuals and families impacted by these diseases to listen to their stories, understand their challenges, and ensure that our work reflects their lived experiences.

At the heart of our mission is the desire to bring together like-minded individuals who are passionate about making a difference. Whether you are a student, caregiver, patient, researcher, or advocate, there is a place for you in this movement. Together, we can build a future where every person impacted by neurodegenerative disease is seen, supported, and empowered.

Our Mission

I am incredibly proud and grateful to share two major milestones from my advocacy journey in California: Assembly Bill 829 (AB 829) and Senate Concurrent Resolution 184 (SCR-184).

Assembly Bill 829 was officially signed into law by Governor Gavin Newsom on August 28, 2025, establishing the California Parkinson’s Disease Research Voluntary Tax Contribution Fund. This fund will support research, innovative treatments, and services for the more than 120,000 Californians living with Parkinson’s disease.

The approval of AB 829 was a meaningful step forward for the Parkinson’s community and for the continued effort to support research and improve the lives of those affected by the disease. Seeing this bill become law was incredibly special, and it showed what can happen when advocates, families, organizations, and communities come together around an important cause.

Then, in 2026, SCR-184 became another major milestone in my advocacy journey. Senate Concurrent Resolution 184 was officially chaptered by the California Secretary of State on August 18, 2026, recognizing September 28 through October 4, 2026, as Frontotemporal Degeneration (FTD) Awareness Week in California. The resolution helps bring greater awareness to FTD and recognizes the individuals, families, caregivers, researchers, and communities affected by this devastating neurodegenerative disease.

Having the opportunity to advocate for both Parkinson’s disease and Frontotemporal Degeneration has been an incredibly meaningful experience. These two milestones represent more than just bills and resolutions—they represent the power of raising your voice, educating others, bringing attention to diseases that deserve greater awareness, and working together to create meaningful change.

None of this would have been possible without the incredible support from everyone who stood beside me throughout this journey. Whether you shared my posts, spread information, contacted representatives, raised awareness, encouraged me, or simply took the time to learn more about these diseases, every single effort mattered.

I want to sincerely thank everyone who supported me in advocating for AB 829 and SCR-184, and everyone who helped make these milestones possible. I am so grateful for every person who believed in these causes and joined me along the way.

These accomplishments have reminded me that one voice can start a conversation, but a community can create change. I hope these milestones continue to inspire more people to learn, advocate, raise awareness, and support the millions of individuals and families affected by neurodegenerative diseases.

Thank you so much for supporting me, believing in my advocacy, and being a part of this journey. I truly could not have done this without you.

Thank you!

Get Involved

Have 5 Minutes? Learn About ACR-177.

Assembly Concurrent Resolution 177 (ACR-177) recognizes May 2026 as Amyotrophic Lateral Sclerosis (ALS) Awareness Month in California. ALS, also known as Lou Gehrig’s disease, is a progressive and fatal neurodegenerative disease that affects nerve cells in the brain and spinal cord, gradually impairing a person’s ability to walk, talk, eat, and breathe.

ACR-177 highlights the importance of increasing public awareness of ALS, supporting individuals and families affected by the disease, and advancing research toward better treatments and, ultimately, a cure. The resolution also recognizes the important role of caregivers, researchers, healthcare providers, volunteers, and organizations supporting the ALS community.

Have 15 Minutes? Spread the Word.

Share information about Amyotrophic Lateral Sclerosis (ALS) and ACR-177 with your friends, family, school, and community. Increasing awareness can help people better understand the challenges faced by individuals living with ALS and the importance of research, treatment, caregiving, and support.

Example post:

I support #ACR177 and efforts to raise awareness about Amyotrophic Lateral Sclerosis (ALS). Greater awareness can help educate our communities, support individuals and families affected by ALS, and encourage continued research toward better treatments and a cure. #ALSAwareness #EndTheSilence

Have 30 Minutes? Educate Yourself and Others.

Learn about the symptoms, progression, and challenges associated with ALS and share reliable information with those around you. ALS can affect movement, speech, swallowing, and breathing, while families and caregivers may also face significant emotional, physical, and financial challenges as the disease progresses.

Education and awareness are important parts of supporting the ALS community. Learning about the disease can help us better understand what individuals and their families experience and why continued research and access to treatments, medical equipment, communication technologies, and supportive services are so important.

Have 2 Hours? Become an Advocate.

Use your time to take action for the ALS community. Participate in ALS Awareness Month activities, share educational resources, support organizations dedicated to ALS research and patient support, volunteer in your community, or help raise awareness among the people around you.

Clinical trials play an important role in evaluating new treatments, improving quality of life, and developing assistive technologies for people living with ALS. Every effort to educate, advocate, volunteer, or support research can help bring greater attention to ALS and the individuals and families affected by this disease.

Whether you have 5 minutes, 15 minutes, 30 minutes, or 2 hours, every effort to learn and spread awareness matters.